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Post by Philip Ayres on Sept 9, 2010 0:13:55 GMT
already know some
when you line all the problems up:
* Language delay (ie he hardly talks)
* Learning Difficulty
* ASD
that's a hell of a lot to have on your plate as a child.
And as parents too. We're moving his nursery to a different one which is better for him. They applied for the funding for a one to one worker in June. Last week the funding authority wrote back and said "but isn't he going somewhere else?" Couldn't they have done that in June? So if that's sorted the school can recruit, then CRB check, then Jonathan can start and if we're lucky that might be before Christmas .......
Then we've got his statement, which is going to have to be redrafted now anyway in light of the ASD diagnosis. It was horribly wooly about when Jonathan woulod have someone with him.... basically he needs someone 100% of the time he's there so he can comunicate. The statement didn't make it clear and when Liz chased it it turned out they decided he needed someone 60% of the time..... and not told us. But by signing the statement we'd have agreed to that.
Liz, bless her, is doing most of the work on Jonathan's needs and education, I can't keep it all in my head and she can, thanks to her former career as a social worker, get the system to work.
Given the ammount of stress it's all causing it's no wonder we're both suffering here. Lots of nights for me where the brain won't shut off, lots of pain from the CMT which doesn't like stress.......
Deep breath..... relax.....
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Post by Philip Ayres on Sept 16, 2010 13:40:50 GMT
Jonathan can read numbers.
We were driving through Weymouth and I said to him"look, bus" and he signed 2. Now we intially thought it was two buses, but no, it was a number 2 bus. So the next time we saw a bus we tried it and he got that right. And the next time.
Experimentation shows he recognises the symbols for numbers 1 to 5. His ability to sign larger numbers than that back to us is poor so that will effect our ability to test him on numbers larger than 5. But a HUGE step forward.
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Post by The Doctor on Sept 16, 2010 16:45:28 GMT
Hooray!
-Ralph
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Deleted
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Post by Deleted on Sept 16, 2010 17:07:17 GMT
At least that's some good news in all of the worry you've had recently.
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Post by Grand Moff Muffin on Sept 16, 2010 17:08:20 GMT
Jonathan can read numbers. We were driving through Weymouth and I said to him"look, bus" and he signed 2. Now we intially thought it was two buses, but no, it was a number 2 bus. So the next time we saw a bus we tried it and he got that right. And the next time. Experimentation shows he recognises the symbols for numbers 1 to 5. His ability to sign larger numbers than that back to us is poor so that will effect our ability to test him on numbers larger than 5. But a HUGE step forward. Excellent! Martin |
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Post by Shockprowl on Sept 16, 2010 17:42:54 GMT
That's fantastic.
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Post by Andy Turnbull on Sept 16, 2010 23:48:43 GMT
Fantastic news!
Andy
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Post by legios on Sept 17, 2010 10:59:15 GMT
That is excellent news.
Karl
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Post by Philip Ayres on Feb 12, 2011 12:26:15 GMT
Things Phil has found out about his son this morning:
1) He no longer likes riding on Buses due to the noise (sound is an ASD stimulus for him)
2) He can recognise the sign for McDs and knows they sell chips
3) He'd rather walk all the way up Tudor Drive than get on a third bus (stick kt2 into multimap and see what you get)
4) Despite not having been inside for 18+ months he knows thaT the building halfway up Tudor Drive is a library and has automatic doors
5) That he knows you have to be quiet in the library.
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Post by Shockprowl on Feb 12, 2011 19:45:13 GMT
Good lad!!
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Post by Philip Ayres on Feb 24, 2011 19:27:21 GMT
Jonathan's Up BedBest Thing Ever. £52 off eBay from Bracknell. Plus collection and assembly
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Post by Philip Ayres on Feb 24, 2011 19:29:52 GMT
Had we mentioned the speech has come on a little over the last few weeks?
Lots of
I want
I do
I go
I get
I press
etc with other words, some less distinct, following
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Post by The Doctor on Feb 24, 2011 20:19:45 GMT
Jolly good.
-Ralph
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Post by legios on Feb 24, 2011 21:58:49 GMT
Excellent. That is very good to hear.
Karl
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Hero
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King of RULES!
Everything Rules
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Post by Hero on Feb 24, 2011 23:50:06 GMT
That bed RULES
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Post by Philip Ayres on Nov 15, 2011 7:06:43 GMT
FIVE ????? Where have the years gone ????
Happy Birthday Jonathan!
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Post by The Doctor on Nov 15, 2011 8:39:01 GMT
Hooray!
-Ralph
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Post by legios on Nov 15, 2011 13:13:43 GMT
Hooray! Happy Birthday to Johnathan!
Karl
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Post by Andy Turnbull on Nov 15, 2011 13:31:49 GMT
Happy Birthday Jonathan!
Andy
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Post by Philip Ayres on Nov 15, 2011 18:50:42 GMT
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Post by Andy Turnbull on Nov 17, 2011 1:54:45 GMT
I do notice Sarah Jane Honeywell visible on the tv in one shot. I approve of the Pingu cake.
Andy
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Post by Shockprowl on Nov 17, 2011 19:49:17 GMT
Belated Scooooobery Doooooberies oh offspring of Big Phil!!! Where does it go?
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Post by The Doctor on Nov 17, 2011 20:20:43 GMT
I do notice Sarah Jane Honeywell visible on the tv in one shot. I approve of the Pingu cake. Andy Pingu tried to kill Ms Pond, remember! -Ralph |
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Post by kayevcee on Nov 17, 2011 20:25:14 GMT
Pingu cake! Well done Ayres family!
Man, I'm trying really hard not to do the typical "look how much he's grown!" business. He's 5, and I haven't seen him in person in 2 years. Of course he's grown.
-Nick
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Post by legios on Nov 17, 2011 20:59:28 GMT
Pingu cake is, as others have said fantastic.
Nice to see young Master Johnathan looking like he was having a great birthday.
Karl
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Post by Philip Ayres on Nov 17, 2011 22:15:02 GMT
You should have been there when he opened his red nintendo ds. Literally dancing round the room in joy.
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Post by Philip Ayres on Feb 29, 2012 11:40:08 GMT
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Hero
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King of RULES!
Everything Rules
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Post by Hero on Feb 29, 2012 11:42:46 GMT
BFG RULES
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Post by The Doctor on Feb 29, 2012 18:34:19 GMT
Wow! He's looking more and more like his dad!
-Ralph
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Post by Philip Ayres on Feb 29, 2012 18:46:01 GMT
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